Patient, Caretaker and Family Resources

Expert Medical Guidance

Get experts’ educational guidance on whole health cancer care: treatment, symptoms, nutrition, exercise, and mediational care in one app. Complements your existing care team.

The Ivy Center's patient navigation program is committed to empowering individuals facing brain tumors to make informed decisions and receive the comprehensive care they deserve. Ivy Navigators serve as guides and advocates, helping patients and their families navigate the complex journey of diagnosis, treatment and recovery. From the moment of diagnosis, our navigators offer unwavering support, ensuring patients have the necessary resources and information.

Speak with an Ivy Navigator today about eligibility in a brain tumor clinical trial.

Call 602-406-8605

Send an email to research@ivybraintumorcenter.org

Fill out the trial eligibility form

At Grieve Leave, we’re on a mission to make grief a normal thing to talk about. Together, we’re building a world where everyone’s grief is seen and heard, and it’s no longer something to avoid because it’s scary to talk about. By bringing people together, both virtually and in person, Grieve Leave provides a platform to share experiences of loss and reduce the sense of isolation. Grieve Leave shares resources, stories, and a healthy dose of humor, ensuring that people have the support and insights they need for their grief journey.

Grieve Leave was founded by Rebecca Feinglos, whose mother died of a glioblastoma. This personal experience fueled Rebecca's dedication to creating more resources and support for those grappling with all aspects of loss and grief, who feel like they don’t have the space or permission to do it.

Grief, Loss, and GBM Support Group for Families

Inheritance of Hope (IoH) is a national charity with the mission of inspiring hope in young families facing the loss of a parent. Hope at home offers hour long support groups for GBM specific support, grief, loss, and much more.

Washington, DC Area Support Group

Hope Hubs™ inspire hope through local, face-to-face communities of care with people who “get it.” We welcome families facing the loss of a parent, both pre- and post-loss. Hope Hubs™ offer hope-inspired relationships and resources for each person in the family, while building a hope-filled circle of support in person

Pickles provides free peer-to-peer support and resources to kids who are impacted by their parent or guardian’s cancer. They offer pickles family support kits, parent webinars, resources and a virtual youth program.

Live Strong at the YMCA

Live Strong and the YMCA worked with researchers to conduct a study on the impact of the program on participants’ cancer-related outcomes. They found that participants experienced significant increases in physical activity, overall quality of life and fitness performance as well as decreases in cancer-related fatigue. Join a program today!

A resource created by the Cancer.gov website and NIH cancer institute to view incident rates in specific US state or counties.

Clinical Trial Research

A resource provided by the U.S. National Library of Medicine. Explore over 400,000 research studies in all 50 states and in 220 countries. Search for actively recruiting studies that you may be able to participate in or learn about new interventions/treatments that are being considered.

Visit our Every Day Counts project to view resources for Childhood Cancer Patients!

Choose a tree instead of a tombstone and spread ashes around your own Memorial Tree in a protected forest. A Memorial Tree is an established, growing tree that serves as a resting place for cremated remains. Ashes are mixed with soil and spread at the base of the tree, becoming forever part of the forest.

Forests in California, Arizona, Illinois, Minnesota, Massachusetts, Connecticut

Every memorial tree Includes rights to spread ashes for one person, rights to add people and pets in the future, ongoing access to the forest and saplings planted in your honor.

Cancer Dojo is a positive ideology, supported by a growing movement in the power of positive thinking. One of the cornerstones of cognitive therapy is the reframing of something that is scary and overwhelming, into something else, that is manageable, visual and in the case of cancer patients, something that is beatable, inspiring, optimistic and authentic. This kind of creative cognitive reframing is shown to build patient resiliency and enable a better chance of a more positive cancer outcome. They have developed a range of culturally relevant reframing videos and metaphors with the intention of making them more resilient to the negative effects of the disease.

Go with the Good Foundation supports young adults with Glioblastoma or an advanced brain tumor diagnosis and their immediate families with financial assistance and resources to focus on care, treatment, and quality of life. They also assist with tuition and scholarships for children impacted by a brain cancer diagnosis.

Email hello@gowiththegood.org to request eligibility criteria and process.

Reviewed by Dr. Henry Friedman at Duke University and Linda Liau at UCLA

The Glioblastoma Bill of Rights was crafted by Our Brain Bank for glioblastoma patients and caretakers.

It’s important for you to be able to have honest, open discussions with your cancer care team. Ask any question, no matter how small it might seem. Here are some you might want to ask, but be sure to add your own questions as you think of them.

Fighting Cancer Today provides support groups, comfort kits and financial services to the cancer community. Therapeutic Tuesday support group is held the first Tuesday of every other month and provides individuals with a safe space to navigate their emotions while fighting cancer. Comfort Kits, which are personalized and include items to help support and comfort families through this journey, are sent to cancer patients and caregivers. Financial support aid for cancer patients and caregivers with transportation assistance in the form of rides and fuel cards and aid for utilities.

Kesem offers a broad range of free programs and services to support children affected by a parent's cancer. Their flagship program, Camp Kesem is a free, week-long overnight summer camp experience, designed specifically for children ages 6 to 18 who are impacted by a parent's cancer. There are currently 120+ chapters in 40+ states.