An organization aiming to improve the quality of life for pediatric oncology patients by providing resources for the emotional, social, and academic needs of patients; events/programming varies by location.

Creates bi-monthly customized programs to give families with critically ill kids the opportunity to create fun memories, such as movie tickets, sports games, live shows, zoo outings, and care packages; have in-person programming in Maryland, Ohio, and Florida, but also have national online programming anyone can participate in; also hold fundraising events too.

Holds cost free Adventures for kids with life-threatening conditions and their families, giving them a chance to go to zoos, sporting events, amusements parks, etc with other A Kid Again families.

Youth-led nonprofit that hosts monthly virtual events to connect pediatric cancer patients around the world with trained volunteers and provides personalized activities, discussions, and games; also provides digital and handmade artwork, including bookmarks, cards, bracelets, crochet work, origami, and posters.

An app developed to give social support cancer fighters, survivors, and caregivers; connects people with those in their age bracket that share similar diagnoses, locations, side effects, interests, hospital, and more — for anyone age 12 and up.

Organization that provides a free one-on-one mentor to cancer fighters, survivors, and caregivers, including teens, adolescents/young adults, and kids (no age requirement); personalized to age, cancer type, gender, and experience

Monthly discussion group for survivors aged 8-15 for resources, discussions, and connection.

A list of 17 organizations that provide funding for children and teens affected by cancer, including travel, scholarships, and financial help

A list of nine organizations that provide financial assistance for pediatric brain cancer.

A list of nine organizations that provide financial support to children and young adults/adolescents, as well as five more that provide college scholarships and financial aid.

Emergency financial assistance fund for families experiencing financial hardship due to a child’s brain tumor diagnosis; does not cover medical bills, but covers household expenses, mortgages/rent, utility bills, car loan and insurance payments, travel expenses for treatment, professional counseling services for the patient and family, and funeral expenses.

A list of many financial assistance organizations for a variety of categories including pediatric and young adult funding, travel and lodging expenses, prescription drug and medical help, and much more.

Offers two grants: the transportation assistance fund, which helps cover travel and lodging expenses for families traveling for pediatric cancer treatment, and the emergency assistance fund, which provides $300 in emergency assistance for the family of a child who has been inpatient or away from home for 30 consecutive days within the last three months — must demonstrate financial need for both grants.

Provides transportation assistance in amount of $50 or $100 Uber vouchers up to three times per quarter for travel costs specifically associated with pediatric brain cancer treatment.

A grant of up to $1,000 for a pediatric cancer patient and their family to receive therapy/counseling

Offers several resources to support parents and families, including a peer-to-peer mentoring program, webinars, insurance and financial advice, a newly diagnosed resource notebook, and a survivorship guidebook.

A database of knowledge on pediatric brain tumor facts, what to do after receiving a diagnosis, impacts on the family, and how to return to school, as well as a free Newly Diagnosed Toolkit.

Provides a database of resources for parents on advocacy and legislation, clinical trials, camps, education, emotional support, grief, health insurance, survivorship, transplants, wish foundations, and much more.

Free individual and support group counseling from licensed oncology social workers in English and Spanish to anyone in New York or New Jersey, by phone, in-person, or video call

Online support group for families of newly diagnosed kids with brain cancer.

Hospital-based support group facilitated by trained peer leaders and hospital psychosocial staff to explore obstacles and teach support/coping strategies 

• Locations include: The Cancer Center at CHOP, Levine Children’s Hospital, Cohen Children’s Medical Center, Dana-Farber Cancer Institute, and Lurie Children’s Hospital

Offers several different private listservs that are managed by a small group of administrators that anyone in the group can message on.

Link to a webinar about anticipatory grief specifically with pediatric brain cancer patients, including signs/stages and how to navigate it.

Online support group for bereaved families of children with brain cancer.

Program for bereaved parents of childhood cancer patients with virtual gatherings, online support spaces, and in-person respite retreats.

Offers a private Facebook community for families who have lost a child to a brain tumor diagnosis; also provides CBTF social workers to give personalized one-on-one support and answer any questions (not sure if this costs money, it doesn’t say).

For children and teens affected by a sibling’s pediatric brain tumor diagnosis; focuses on developing mindfulness, self-advocacy, and self-reflection through art projects on an online support group.

Online support group for siblings aged 8-15 meeting every other month whose sibling has a childhood brain tumor diagnosis.

A program to support siblings of kids with a cancer diagnosis — has a Comfort and Care mailing program that, over 2 years, sends mailings to help kids build coping skills and give encouragement while their sibling fights cancer.

Guide on navigating anticipatory grief as a patient or loved one with coping strategies/tips.

Guide on navigating and preparing for grief, as well as additional resources/links at the end.

Article about different kinds of grief, how children grieve, and how to support children who are grieving.

At Grieve Leave, we’re on a mission to make grief a normal thing to talk about. Together, we’re building a world where everyone’s grief is seen and heard, and it’s no longer something to avoid because it’s scary to talk about. By bringing people together, both virtually and in person, Grieve Leave provides a platform to share experiences of loss and reduce the sense of isolation. Grieve Leave shares resources, stories, and a healthy dose of humor, ensuring that people have the support and insights they need for their grief journey. Grieve Leave was founded by Rebecca Feinglos, whose mother died of a glioblastoma.

Guide on what palliative care is and the different types of care for patients with brain cancer.

Guide on what end of life care looks like for brain cancer patients, caregivers, and families, including advanced care planning, a webinar on whether to continue treatment or not and how to discuss that with doctors, and hospice care.

A database of more than 10,000 home care and hospice agencies in the U.S., with a brief information page on each one.

A program by the National Alliance for Care at Home with resources and guides for people taking care of loved ones impacted by a serious illness, including detailed information on palliative care, advance directives, and hospice care.

A guide on what end of life care looks like for those with cancer; more focused on how to navigate actual process rather than legal elements, which can be found in the ABTA guide above.

Offers free weekly virtual tutoring sessions to children facing cancer and other serious illnesses and their siblings.

An article on different steps families can take to support their child returning to school after brain tumor treatment, such as a 504 plan or an IEP, as well as an Imaginary Friend Society video for kids about it.

An online free tutoring program for cancer patients, survivors, and siblings.

Online support groups offered for teens (15-19) and another for young adults (18-35), including both meetings and virtual chats for survivors of childhood brain tumor diagnoses; Teen Leadership Program one is for those with prior experience with CBTF, but Teen Survivor Chat and young adult programs are open to all.

Monthly online support group for AYA brain tumor patients to meet and connect with each other; also many additional searchable support groups for a variety of populations.

An organization created by adolescent/young adults for AYAs who are cancer fighters or survivors; offers bi-monthly discussion sections, meet-ups, and runs CancerCon — a yearly meetup for any and all AYA cancer fighters and survivors.

A database of organizations that offer grants/funding for fertility preservation pre and post treatment.

A guide with information on different types of treatments and their impacts on fertility for men and women, as well as fertility preservation options and a list of questions to ask the doctor about treatments and fertility.

A program by Livestrong that partners with specific clinics to offer at least a 25% discount on fertility-preserving procedures for patients who have a cancer diagnosis that impacts their fertility.

A list of organizations that offer grants and financial assistance with speech therapy or speech devices for children with verbal language difficulties.

Article with advice for patients with motor issues as a result of a brain tumor and advice for caregivers/families on how to help improve internal/external balance concerns.

Article by the National Health Service with an overview of different speech difficulties children with brain tumors might experience and strategies to help.

Organization that runs free day camps, in-hospital activities, and year-round programs for pediatric cancer patients and their families.

Provides free hospital housing and respite housing to critically ill children, with beach and mountain properties on the east coast.

Free age/gender specific jars that have activities/toys for kids fighting cancer in hospitals or oncology centers.

A free photography program for kids and teens with cancer where they are mailed a professional photography kit and paired with a mentor to learn professional photography skills to have fun and be creative during treatment.

A free program that brings fun musical experiences to kids in cancer treatment across 50 healthcare facilities in 20 states in-person or over Zoom; kids can request songs, get a music lesson, do a sing along, or borrow an instrument to play along too

Has several free programs for hospitalized kids, including delivering toys and gaming stations to kids, transporting kids in red Hero Wagons when they leave their rooms, and creating fun and brightly colored hospital gowns.